Staff

Henry Brehm 
Executive Director

M. Usman Aziz, M.D
Patient Registry Program Manager

Marilyn Hailperin
Director of Research & Education

Lauren Lee
Associate Director

Brianna Newland
Director of Special Events

Tim Davis
Marketing Manager

Tommi Jackson 
Database Administrator

Jessica Martin
Administrator 

Uju Ogbuawa
Patient Advocate 

Clayton Platt
Director of Development