Nephrotic Syndrome, FSGS, Kidney Disease
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  Sage

On Friday night, October 5, 2007, our life changed. After spending three days at Children’s Hospital of Philadelphia (CHOP), Sage was diagnosed with Minimal Change Nephrotic Syndrome.

Sage has been dependent on steroids (oral prednisone) since her diagnosis. Steroids have long-term negative effects and also cause her to have a weaker immune system. However, there are many children who are not as fortunate as Sage and are steroid resistant.

 

Seeing these less fortunate children while on the Nephrology floor at CHOP has left a lasting impression. We see life differently. Now more than ever, we live for each and every moment, taking nothing for granted. Life is too short and this journey has opened our eyes, giving us a greater appreciation for life and our children. The Nephcure Foundation is our support and reminds us we are not alone.

-Josh and Cori

 
 

 

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