Policy & Disclaimers

Welcome to NephSpace.org
NephSpace.org is provided to YOU by The NephCure Foundation (www.NephCure.org), a 501(c)(3) non-profit organization committed exclusively to support research seeking the cause of the potentially debilitating kidney disease, Focal Segmental Glomerulosclerosis (FSGS) and Nephrotic Syndrome (NS), improve treatment, and find a cure.

NephSpace is open online community for patients and families affected by Nephrotic Syndrome, Minimal Change Disease, FSGS and Membranous Nephropathy.  As a NephSpace member, your benefits include:
•    Interacting with other patients/families
•    Connecting with different cultures, nationalities, and age groups
•    Sharing your concerns, hopes and personal stories, and help to inspire others
•    Access to educational materials to help you better understand FSGS, Nephrotic Syndrome, and Minimal Change Disease
•    Specific sections vetted by nephrologists, researchers, dieticians, and social workers
•    Staying on top of ongoing studies and clinical trials
•    Receiving the latest information on educational initiatives and other events in your area

The success of NephSpace.org depends on your participation and our providing an educational, interactive, and safe environment.  We encourage you to share your personal stories and to honor the following ground rules to protect yourself, The Nephcure Foundation, and other NephSpace members:
•    Respect others’ opinions
•    Always consult with your healthcare professionals before making any changes to your medical care, lifestyle, diet after reading information on NephSpace
•    Use acceptable language
•    Use goo