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Alan's Story
I was first diagnosed with Nephrotic Syndrome when I was three years old. I am now 28 years old and doing much better.
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Krista's Story
Krista was diagnosed with Nephrotic Syndrome when she was one year old. Krista is now 15 years old and hasn't relapsed in three years.
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Marcus's Story
Marcus was diagnosed with FSGS when he was three years old. Marcus is now a nine yea old boy who loves fishing, biking, and playing video games.
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Liam's Story
Liam was diagnosed with FSGS when he was two years old. He is now 18 years old and has battled through thick and thin to get where he is today.
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Stacey's Story
Stacey was diagnosed with Nephrotic Syndrome when she was eight years old. She is now 34 years old and living proof that one can beat Nephrotic Syndrome.
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Molly's Story
Molly Modes was diagnosed with FSGS just before
her eighth birthday.
When asked to write an essay on hardships,
this is what she wrote.
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Emma's Story
Emma Jane Raftery was born on February 17, 2004. She had long eyelashes and rosebud lips. She was perfect.
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Lexi's Story
Looking back at the pictures from Lexi’s 6th birthday party, I am reminded that she was not quite herself that day. She had been complaining of a stomach ache.
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April's Story
“I grew up healthy, and out of nowhere, my kidneys failed on me,” said April. “Living with FSGS has been hard for me. The hardest part was accepting my illness and taking my medications.”
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Angelica's Story
Having FSGS has changed Angelica’s life, and is something she must deal with physically and emotionally. However, she is determined to help raise awareness for her condition.
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Tim's Story
In 1987 I was a 19-year-old freshman attending Hofstra University (in Uniondale, NY) on a full scholarship for lacrosse when one day I felt ill and went to the doctor.
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Adriana's Story
In February of 2005, we noticed that our 17-month-old daughter, Adriana, was coughing excessively. As concerned parents, we took her to the emergency clinic several times.
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Renita's Story
In 2004 I was a busy working mother who felt fine. Looking back, I remember now that my ankles always seemed to have water in them, my eyes would get puffy sometimes, and I could make indentions on my legs when I had water in them. But I had no reason to worry.
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Christian's Story
20 Years of FSGS in 2500 Words.
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