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OUR STORIES |
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In August of 2006, it started to appear as though Nick, three years old at the time, was gaining weight. Over a period of 5 days, Tom and I realized something was wrong when Nick had swelling from his eyelids to his ankles.
We brought him to an on call doctor on a Saturday, and by the end of the visit I was given a slip of paper and told to contact a Renal & Transplant facility in Springfield, MA. Needless to say, I was in hysterics at the end of that visit. Full Story |
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Our precious son, Mac, was diagnosed with Childhood Nephrotic Syndrome after his five-year well-child checkup. Our pediatrician noticed that Mac had elevated blood pressure and checked his urine, which was
positive for protein (3+). Because he seemed so healthy, it was hard to believe that.....Full Story |
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In August 2005, Jessica was diagnosed with FSGS. She was a sophomore in college when she found out. Jessica went through countless tests, trips to doctors, and emergency room visits before they were able to diagnose her with this devastating disease. Her life has not been the same. Although she was fortunate enough to finish college, she is still fighting an uphill battle. Full Story |
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If you’re a parent, you can probably imagine what it would feel like if you took your child in for a routine exam only to have the doctor say, "Would you please come have a seat in my office." Yet, that is exactly what happened when our son, Matthew, was first diagnosed with Childhood Nephrotic Syndrome...Full Story |
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My youngest daughter, Megan, is living with the kidney disease Focal Segmental Glomerulosclerosis (FSGS). In 2000, we had taken Megan to the pediatrician for her 4-year-old wellness check-up when her urine tests came back with high protein levels. We were referred to a pediatric nephrologist. At the time, there wasn't one where we live in Wichita, KS...Full Story |
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My name is Aubrey. I am 8 years old and in the third grade. I love to dance, read, do puzzles, and play. On April 15, 2009 I was diagnosed with a rare kidney disease called Focal Segmental Glomerulosclerosis (FSGS). This disease causes the filters in my kidneys to collapse and eventually..Full Story |
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We would like to share the story of our daughter’s journey with Childhood Nephrotic Syndrome.
On February 20, 2008, my three-year-old daughter, Kayleigh, woke up with swelling around her eyes. Thinking it was an allergic reaction to something, I took her in to see her doctor. He could not find any problems, but gave us antibiotics, assuming the swelling was from some sort of infection....Full Story |
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April was diagnosed with Nephrotic Syndrome in September of 2008 at 3 years old. One morning she woke up with swollen eyelids and we took her to the pediatrician. At first they thought she had an allergy or some reaction to possibly a laundry detergent and was given drops for her eyes. We were sent..Full Story |
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At the age of 21 months, our beautiful little angel Gabriella Rose (Elle) Falzarine was diagnosed with minimal change after frequent relapses and multiple hospital visits. Over the years, we were told to move to a warmer climate and that would help to keep Elle in remission. So, about three years ago, we moved to Pawleys Island, South Carolina. For the first year, Elle did great, then she starting to digress. We were basically living in the hospital 3-5 days a week. Every week, Elle was having treatments ..Full Story |
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Joey was diagnosed with Nephrotic Syndrome at the age of two. As you can imagine, my wife and I were devastated! However, we were blessed with a great nephrologist who helped us cope and made us both feel that we were truly "involved" in guiding our child through his illness. Initially, Joey had problems handling..Full Story |
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