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- Home
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- News & Events
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- Education & Support
- What is Nephrotic Syndrome & FSGS?
- Patient Stories
- Adele's Story
- Alyssa's Story
- Angelina's Story
- Aubrey's Story
- Audrey's Story
- Autumn's Story
- Belle's Story
- Bobby's Story
- Cassidy's Story
- Cheri's Story
- Cody's Story
- Deidra's Story
- Eric's Story
- Frido's Story
- Gianna's Story
- Hannah's Story
- Heather's Story
- Jalen's Story
- Jamie's Story
- Jenn's Story
- Levi's Story
- Logan's Story
- Mac's Story
- Miranda's Story
- Molly's Story
- Nick's Story
- Noel's Story
- Peg's Story
- Rachelle's Story
- Ryan's Story
- Tracey's Story
- Tyler's Story
- Princess' Story
- Greer's Story
- Dan's Story
- Christian's Story
- Jessica’s Story
- Megan's Story
- Andrew's Story
- Greer's Story
- More Patient Stories
- Share Your Story
- FREE NephCure Lunch & Learn
- NephSpace Online Community
- Lay Research Summary
- NephCure Suggested Resources
- Medical Resources for Patients
- Research
- Medical Professionals
Meet Nadia or...
...watch her on YouTube. See the daily video postings by NephCure's Nadia Stadnycki as she visits patients and families in Florida in April, 2012. Click here to see a map and access the videos >
Cuppycake Sam has NS
Learn about the boy with Nephrotic Syndrome (NS) who became famous. See the video, like it and share it. Go Here >
Our Story
Jessica’s Story
In August 2005, Jessica was diagnosed with FSGS (Focal Segmental Glomerulosclerosis), a disease that causes the filters in her kidneys to collapse and will eventually lead to renal failure. She was a sophomore in college when she found out.
Jessica went through countless tests, trips to doctors, and emergency room visits before they were able to diagnose her with this devastating disease. Her life has not been the same. Although she was fortunate enough to finish college, she is still fighting an uphill battle.
Jessica wishes to teach and open her own business some day, but because she has been in and out of the hospital, her dream is a long ways away. She was on medications to help her kidney’s remain functional, but, unfortunately, they have failed. She is now on dialysis, and her only hope now is a kidney transplant.
Our hope is that doctors will find a cure so that people who are dealing with this disease can live normal lives. Please help in the fight by donating to this worthy cause.
Together with other patients and families, Jessica's Mom is organizing the first NephCure Walk in Richmond, VA, on May 1st.
Walk with Jessica and in support of all patients affected by Nephrotic Syndrome and FSGS. To learn more, click here.
Your story could provide support and information to many patients and their families. If you would like to share your story, email NephCure at info@NephCure.org.
By submitting your story you agree to allow NephCure to share your information and photo for marketing and promotional purposes.

