Resources for Medical Professionals
The NephCure Foundation is the one stop shop for information and resources on Nephrotic Syndrome and FSGS. NephCure works in conjunction with other prominent organizations such as:
National Institutes of Health (NIH)
The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
The American Society of Nephrology (ASN)
The American Society of Pediatric Nephrology (ASPN)
American Nephrology Nurses Association (ANNA)
Upcoming Conferences and Meetings:
NIDDK Glomerular Disease Conference, April 17-18, 2012
Research Accelerator Meeting, April 21-22, 2012
9th International Podocyte Conference, April 22-25, 2012
2012 PAS/ASPN Annual Meeting, April 28-May 1, 2012
NIH Workshop on Natural History Studies of Rare Diseases: Meeting the Needs of Drug Development and Research, May 16-17, 2012
Academic Research Departments:
University of Michigan, Department of Nephrology
University of Michigan – Renal Genes, “Coordinating mutational analysis in selected monogenic renal disorders” (Friedhelm Hildebrandt, MD)
University of California San Diego Department of Cellular & Molecular Medicine, (Marilyn G. Farquhar, PhD)
Einstein-Montefiore Institute for Clinical & Translational Research, (Frederick Kaskel, MD, PhD)
Leonard Miller School of Medicine, University of Miami, Nephrology and Hypertension Division (Jochen Reiser, M.D., Ph.D.)
Matrix Biology at Karolinska Institutet, Stockholm Sweden, (Karl Tryggvason, MD, PhD)
Duke Center for Human Genetics, (Michelle Winn, MD)
Laboratory of Inherited Kidney Disease, (Martin Pollak, M.D., Harvard)
Washington University, Division of Immunobiology, (Andrey Shaw, MD)
The Center for Glomerular Diseases, Columbia University, (Gerald Appel, MD)
ONLINE News and Blogs:
Renal & Urology News
Renal Fellow Network
Nephron Power - Blog
The Kidney Doctor
Trials:
ClinicalTrials.gov, A service of NIH
Organizations:
Italy: Associatiazone Sindrome Nefrosica Italia
France: Association des malades d’un Syndrome Nephrotique idiopathique A.M.S.N.
Netherlands: NeirpatiEnten Vereniging Nederland
Nephrothic Syndrome Trust