NEWS RELEASE: A Life Cut Short; Legendary Rugby Player Dies After 20-Year Battle With Kidney Disease November 19, 2015 by Lauren Eva KING OF PRUSSIA, Pa., Nov. 18, 2015 /PRNewswire-USNewswire/ — NephCure Kidney International is deeply saddened to hear of the passing of Jonah Lomu– a 20-year Nephrotic Syndrome patient, legendary rugby player, and all around wonderful person. Our thoughts are with his family, friends and many fans during this difficult time. Nephrotic Syndrome is a combination of symptoms that result when the kidneys fail to filter properly. The main indication of Nephrotic Syndrome is that protein leaks into the urine, which may cause swelling, fatigue, and scarring of the kidneys. Nephrotic Syndrome can occur because of rare diseases like Focal Segmental Glomerulosclerosis, Minimal Change Disease, or Membranous Nephropathy, which have no known cause or cure. Many Nephrotic Syndrome patients progress to end stage renal disease, requiring transplant or dialysis. A transplant is not always a cure for Nephrotic Syndrome patients, as the disease can reoccur in the new kidney. Like other chronic illnesses, Nephrotic Syndrome takes a toll on both the patient and family’s emotional well-being. Patients and their families often suffer from depression, which only adds to the burden of managing this devastating disease. NephCure Kidney International is leading the global effort to find better treatment options and a cure for Nephrotic Syndrome and the diseases that cause it. By bringing together leading scientists, world-class physicians, industry partners, and an international patient community, we leverage support and fund research to improve the lives of all those affected by Nephrotic Syndrome. Our thoughts are with Jonah’s family and all of the brave patients living with Nephrotic Syndrome. For more information, contact info@nephcure.org or visit www.NephCure.org Contact: Lauren Lee, 610-540-0186 ext. 32 SOURCE NephCure Kidney International
Susan Madigan says November 21, 2015 at 8:51 am I am so very grateful for the work you are doing and whatever I can contribute I will do. This is not a well known illness but I am familiar with it. Thank you so very much.
Gianna Wickkiser says October 13, 2016 at 11:58 pm Hola! I’ve been reading your site for a while now and finally got the bravery to go ahead and give you a shout out from Huffman Tx! Just wanted to tell you keep up the great work!