News

Commissions For Charity

Eli Manning, Miss America and other celebs attend 11th Annual Commissions for Charity Day - NephCure to benefit

May 16, 2013

BTIG LLC, a global financial services firm specializing in institutional trading and related brokerage services, hosted its 11th Commissions for Charity Day this past Tuesday, May 14, 2013. The annual Commissions for Charity Day featured various celebrities

Ragan Wins Talladega!

Talladega winner David Ragan makes pit stop at NephCure golf tournament

May 9, 2013

David Ragan, fresh off a dramatic NASCAR win at Talladega last weekend, is participating in the Jet Food Stores annual golf tournament to support The NephCure Foundation. The event it was held at Twin City Country Club in Sandersville, Georgia.

Jet Food Stores president Charles Turner’s daughter, Madison, suffers from kidney disease FSGS.

Dave Moore - Wisconsin

NephCure Foundation Weekend Proclaimed in Wisconsin

May 1, 2013

On Saturday, April 27, Wisconsin State Representative David Murphy participated in the opening ceremonies of The NephCure Walk in Greenville, Wisconsin. At the event, he presented a proclamation on behalf of Governor Walker

Advocacy UpdateRoad trip: Louisiana Grandmother, Grandson Ready For NephCure Advocacy Day

April 11, 2013

On June 13, The NephCure Foundation will head to Washington, D.C., for its annual NephCure Advocacy Day. Individuals and families affected by the kidney disease Focal Segmental Glomerulosclerosis (FSGS) and Nephrotic Syndrome (NS) will meet with congressional leaders 


NephCure.orgNephCure Foundation Executive Director Selected for Prestigious Fellowship Program

March 29, 2013

The NephCure Foundation today announced that Executive Director Henry Brehm has been selected by the Disease Information Association (DIA) as a member of its 2013 class of Patient Advocate Fellows.

Retrophin Preps for Clinical Trial of Potential FSGS Drug

Research Update - Clinical TrialMarch 18, 2013

Retrophin, Inc., a biotechnology company based in New York City, is preparing for a Phase 3 clinical trial to measure the effectiveness of drug RE-021 in people that have been diagnosed with Focal Segmental Glomerulosclerosis (FSGS). According to information available on Clinicaltrials.gov, a U.S. National Institutes of Health (NIH) website, the study is slated to begin in July 2013 at

World Kidney Day 2013.

NephCure: Advocates and Educates on World Kidney Day 2013

March 15, 2013

In conjunction with World Kidney Day (Thursday, March 14), The NephCure Foundation participated in two high-profile events in the Mid-Atlantic region – World Kidney Day on Capital Hill in Washington, DC and a kidney health fair at Temple University in Philadelphia.

Real Housewives Star Teresa Giudice to Support NephCure at Last of Three Winter Fundraisers

(Updated on March 8, 2013)

Teresa Giudice, of Real Housewives of New Jersey fame, is a long-time supporter of The NephCure Foundation. In her latest effort to support the kidney nonprofit, Teresa plans to appear at or host three events


NephCure News - Approved to Launch Patient Registry

NephCure Approved to Launch Nephrotic Syndrome Patient Registry

February 27, 2013

The NephCure Foundation announced today that it has secured approval for the organization to launch and maintain a first-of-its-kind patient registry for Nephrotic Syndrome and related kidney diseases.

Rare Disease Day 2013

NephCure to Observe Rare Disease Day

February 25, 2013

The NephCure Foundation will be joining the National Organization for Rare Disorders (NORD) and others around the world in observing World Rare Disease Day on February 28, 2013.  On this day, millions of patients and their families will share their stories to focus a spotlight on rare