I'm trying to help a friend find a new nephrologist. She's about 20 minutes from Orlando, but is willing to travel for a good one. Any recommendations would be much appreciated!
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by storaloppan
New reply 9:05 am
5 replies
by annejohn2
New reply 10:30 pm
4 replies
I have MCD and am steroid dependant. In a couple weeks I'll be starting a new treatment (Prograf and Cyclosporine in conjunction with Prednisone didn't work - taken at different times) and my doctor is thinking we could try Cytoxan followed up with...
by kittyhawk
New reply 7:15 am
8 replies
My 16yr old son was just diagnosed with FSGS. We found out when getting him tested for a cause of his Enuresis. After the urologist had done what he could do, my son was referred to a nephrologist who ordered more tests. These turned up 2600mg of...
by Ashley Christian
New reply 11:58 am
15 replies
Hi,
My foster daughter Olivia (who, along with her twin sister are soon to be adopted by us) was just diagnosed with NS 8 days ago. I feel so sad for her as she's been dealt a lot of really awful cards in life and now this. She was diagnosed in...
by mitogoboom
Hello everyone, my name is Jaime Gallardo I am 24 and have been dealing with fsgs since 2009. I went into renal failure last August just as i was supposed to start law school. Unfortunately this put me in the hospital for about a month and a half, and...
by frankamend
New reply 12:46 pm
5 replies
My nephrologist wants me to start using protein sticks to monitor my urine protein levels. Where do I get them? How to use them?
Thanks for your insights!
by storaloppan
New reply 12:41 pm
4 replies
I took prednisone twice in my life, and both times did a VERY slow wean (4-5 months). And even then, I experienced some side effects.
I'm curious for you parents...what do doctors recommend to be an appropriate weaning strategy for kids? The...
by harger921
I was diagnosed with Membranous Nephropathy in March. I have been testing my protein levels in the morning as recommended with the protein levels being at 3+ daily. At the beginning of May, I went gluten free and within a week saw some changes in the...
by Uju
If so, we would like to show you around and tell you all about the resources we have available for patients, their families and friends. Join us in the "New Patient Orientation"...
by Uju
Whether your answer is 'yes', 'no' or 'it depends', researchers would like to understand your child's perspective. There are currently 35 open spots for participants aged 8-17 who have or had active Nephrotic Syndrome within the past six months....
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