Presentations
Lou Antosh, The NephCure Story
Dr. Susan Conley, Nephrotic Syndrome Overview
Dr. Larry Holzman, Rediscovering the Podocyte
Dr. Frederick Kaskel, FSGS Trial Overview
Dr. Bernard Kaplan, FSGS Overview
Dr. Marva Moxey-Mims, NIDDK Research Update
Dr. Madhura Pradham, Management of Nephrotic Syndrome & FSGS
Clinical Trials
PROMIS Study -Patient Reported Outcomes Measurement Information Study
nephrotic-syndrome-studies.org
NEPTUNE
Oral Galactose in Children With Steroid Resistant Nephrotic Syndrome
ClinicalTrials.gov
A Service of NIH
NephCure Funded Research
The NephCure Foundation (NCF) is a non-profit organization and the only organization solely committed to seeking a cause and cure for Nephrotic Syndrome and Focal Segmental Glomerulosclerosis (FSGS). NCF supports clinicians and researchers within this field through the NephCure Foundation Grant Program, NephCure Donor Advised Funds, Lunch and Learn Educational Seminars as well as Advocacy and legislation. NephCure helps families come together for support, to become empowered with knowledge, to stay informed, and to work towards finding the answers. We are kidney diseases NS and FSGS. NephCure has committed $10 million towards research in recent years. These research grants are for projects aimed to discover findings that will help doctors and scientists learn more about Nephrotic Syndrome and FSGS.
Click here to view "NephCure in Action", a summary of all currently funded NephCure research projects.
Current Funding Opportunities Updates:
Leadership at the Nephrotic Syndrome Study Network (NEPTUNE) are accepting applications for two programs: the Ancillary Studies and the Career Development Training Program.
- Ancillary studies - NEPTUNE will serve as a resource to the community of scientists and lay persons interested in studying FSGS, MN, or MCD. The Consortium's ability to share its systematically collected data, biological specimens, and infrastructure for future ancillary studies is as important to advancing this field as studies conducted directly by NEPTUNE. Applications are accepted on a rolling basis. Contact NEPTUNE-Study@umich.edu or call 1-877-9-NEPTUNE to obtain an application and a copy of the Ancillary Studies Proposal Submission and Review Policy.
- Career Development program is designed to support advanced post-doctoral and junior faculty trainees, or established investigators interested in redirecting their investigative focus, who are preparing to become independent investigators in clinical and translational research in human glomerular disease. Successful applicants will design and carry out an individually tailored program that combines a clearly defined training component with a mentored research experience that employs the unique resources of NEPTUNE. Check back soon for more information.
NephCure Research Program:
In 2008, our dedication to our mission became manifest when we enthusiastically announced the NephCure Foundation Grant Program, with the mission of advancing and supporting research in the field of Nephrology specifically to understand the cause and identify treatments or a cure for NS and FSGS. NephCure accepts applications ranging from Basic Science, Translational Science and Clinical Science in four categories, the NephCure Post-Doctoral Fellowship Grant, Young Investigator Career Development Grant, the Established Investigator Grant and the Bridge Grant. With 91% of all donations earmarked for educational and research purposes, NephCure is proud to announce that in 2009 we committed over $6,000,000 to fund research and since awarding our first grant, NCF has supported more than 20 researchers internationally! We currently have not issued an RFA. Please stay tuned as information is udpated.
Eligibility requirements:
1. Basic science relevant to FSGS and other diseases that result in nephrotic syndrome. The organization encourages submission of work with translational relevance;
2. Preliminary clinical studies for the purpose of developing preliminary results that might justify larger more sophisticated clinical studies.
3. Principal investigator must hold a MD, PhD or an equivalent advanced degree.
4. Applications should be investigator initiated.
5. Applications from any country or nationality will be considered
If you would like to submit a letter of intent or have any questions please contact Marilyn Hailperin, Director of Research and Education, at mhailperin@nephcure.org or call (610) 540-0186 ext 25.
NephCure’s Directed Research Portfolio
NephCure will accept applications for support of scientific investigations off-schedule from its Request for Applications Program to meet special circumstances. These applications must address basic, translational or clinical science investigations that advance NephCure’s mission to find the cause, better treatments and a cure for primary FSGS and other diseases that cause idiopathic Nephrotic Syndrome. Grant applications will be peer-reviewed.
Priority consideration will be given to requests for support that are:
- Entrepreneurial in nature or address an unmet need in scientific research associated with glomerular disease (in general) and FSGS and Nephrotic Syndrome (more specifically)
- Associated with matching funds from the applicant investigator’s institution/organization
- “Bridge” grants or short term agreements
Investigators interested in applying for support through NephCure’s Directed Research Portfolio must send a Letter of Interest (LOI) outlining the proposed investigation and describing how the request meets the above criteria. LOIs and other inquirers should be directed to research@nephcure.org.
NephCure' support of the Directed Research Portfolio Program is discretionary and dependent on budget allocations made by NephCure’s Board of Directors each year.
Subject to Revision Last Update May 8, 2012