Nephrotic Syndrome, FSGS, Kidney Disease
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BE AN ADVOCATE

ADVOCACY ALERT
 

In late June, the Cagle family from Royse City, TX, decided to take action in their fight against FSGS and Nephrotic Syndrome and sent a letter to not only their Senator, Kay Bailey Hutchison, and Congressman, Ralph Hall, but also to the ultimate decision-maker, President Barack Obama. Read More.

 

 


You are the voice of all NephCure families when you speak up for vital
research funding or advocate for public policies that bolster the fight against
these devastating diseases. Together, we form a nationwide network of
people dedicated to finding the cause and cure Nephrotic Syndrome and FSGS.

To read more about how your efforts can help make a difference, click here.

Take an active role in shaping public policy. We will give you the tools you need
to succeed:


• a sample letter to your congress person.
• NephCure Now action alerts asking you to reach out to local policymakers.
• news and updates that affect the NephCure community.

To become an advocate contact info@nephcure.org.

To find your local elected officials and for more information about taking legislative
action, please visit http://www.kidneycanceralliance.org

     
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Useful Summary of Health Care Update - Joe Sestak (PA-7)

Congressman Ron Klein letter of support
FY2009 House Approps NephCure
FY2009 Senate Approps NephCure

FASEB Release
FY2009 Memo Approps NephCure