Support:

Frost Valley YMCA Summer Camp: A Retreat for Children with Kidney Disease

Camp Sunshine: A Retreat for Children with Life-Threatening Illnesses and their Families

NephKids: A resource for parents who are living with childhood kidney diseases

Parent’s Place Message Board

KidTalk: Email Support Group for kids with Kidney Disease

KidTalk: Email Support Group for Siblings

Financial Assistance:

SillySmiles.org: Offering financial assistance for families struggling with medical bills

Research:
University of Michigan

Department of Internal Medicine (Lawrence Holzman, MD; Chair, NephCure Scientific Advisory Board and Roger C. Wiggins, M.B., B.Ch.)

University of California San Diego Department of Cellular & Molecular Medicine
(Marilyn G. Farquhar, Ph.D.)

Einstein-Montefiore Institute for Clinical &
Translational Research
(Frederick Kaskel, MD, PhD)

University of Michigan

“Coordinating mutational analysis in selected monogenic renal disorders” (Friedhelm Hildebrandt, MD)

Leonard Miller School of Medicine, University of Miami

(Peter Mundel, MD, PhD)

Matrix Biology at Karolinska Institutet,
Stockholm Sweden

(Karl Tryggvason, MD, PhD)

Research Cont’d:
Duke Center for Human Genetics
(Michelle Winn, MD)

Labratory of Inherited Kidney Disease Brigham
and Women's Hospital
(Lab of Martin Pollak, M.D., Harvard)

Washington University
(Lab of Andrey Shaw, M.D.)

The Center for Glomerular Diseases:
Focal Segmental Glomerulosclerosis

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

Trials:
ClinicalTrials.gov

A service of NIH

Information:
Slides showing Minimal Change Nephrotic Syndrome

Health is Number One

Health & Medicine Website Directory

Information on Lupus

Kidney School

Financial Assistance for Kidney Patients

Renal & Urology News

Organizations:
Italy: Associatiazone Sindrome Nefrosica Italia

France: Association des malades d’un Syndrome Nephrotique idiopathique A.M.S.N.

Netherlands: NeirpatiEnten Vereniging Nederland

Nephrothic Syndrome Trust