Links for Patients & Families
Support:
Frost Valley YMCA Summer Camp: A Retreat for Children with Kidney Disease
Camp Sunshine: A Retreat for Children with Life-Threatening Illnesses and their Families
NephKids: A resource for parents who are living with childhood kidney diseases
Parent’s Place Message Board
KidTalk: Email Support Group for kids with Kidney Disease
KidTalk: Email Support Group for Siblings
Financial Assistance:
SillySmiles.org: Offering financial assistance for families struggling with medical bills
American Kidney Fund: Financial assistance for kidney patients
Research:
Click here to download last year's NephCure Research Update (Lay Research Summary).
Trials:
ClinicalTrials.gov
A service of NIH
Information:
Slides showing Minimal Change Nephrotic Syndrome
Health & Medicine Website Directories:
Information on Lupus
Kidney School
Renal & Urology News
International Organizations:
Italy: Associatiazone Sindrome Nefrosica Italia
France: Association des malades d’un Syndrome Nephrotique idiopathique A.M.S.N.
Netherlands: NeirpatiEnten Vereniging Nederland
United KingdomNephrothic Syndrome Trust