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- 2011 Falmouth Road Race
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- Featured Person: Serretta McDonough
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- Golf Tournament Raises $16K
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- Allie Genatt Visits Hollywood
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- Dance Honors Student
- Family of 5 have 6 Kidneys
- Genatts visit Entourage
- JMU Walk Raises $2K
- Lt. Col. Bailey runs Nautica NYC Triathlon in honor of NS patient
- Pirfenidone for diabetic nephropathy
- Protein Sheds Light on Kidney Disease
- Screening for NPHS2 Mutations May Predict FSGS Recurrence
- Smokler Hosts House Leaders
- Team Colorado Renal-Friendly Potluck
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- Jamie Won!
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- Nephlete, Steve Shatkin, Finishes LA Marathon
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- What is Nephrotic Syndrome & FSGS?
- Patient Stories
- Adele's Story
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Presentations
Lou Antosh, The NephCure Story
Dr. Susan Conley, Nephrotic Syndrome Overview
Dr. Larry Holzman, Rediscovering the Podocyte
Dr. Frederick Kaskel, FSGS Trial Overview
Dr. Bernard Kaplan, FSGS Overview
Dr. Marva Moxey-Mims, NIDDK Research Update
Dr. Madhura Pradham, Management of Nephrotic Syndrome & FSGS
Clinical Trials
PROMIS Study -Patient Reported Outcomes Measurement Information Study
nephrotic-syndrome-studies.org
NEPTUNE
Oral Galactose in Children With Steroid Resistant Nephrotic Syndrome
ClinicalTrials.gov
A Service of NIH
Lay Research Summary
The NephCure Foundation is dedicated to providing information and education for patients and families affected by nephrotic syndrome (NS) and focal segmental glomerulosclerosis (FSGS). In an effort to keep our constituency informed on recent scientific advances, NephCure has created lay summaries of the up-to-date relevant research on Nephrotic Syndrome and FSGS.
Some highlighted articles are also pulled out below. Please note that the Research Update is a review of published research and abstracts presented at national and international nephrology conferences. This material is not specifically endorsed by the NephCure Foundation.
Click here for the Research Updates in their entirety!
July, 2010 PDF
December, 2009 PDF
July, 2009 PDF
September, 2008 PDF
Research on topics that are summarized in the Research Updates include new findings on:
- Drug therapies
- Genetics
- Diagnostic indicators such as biomarkers
- Cellular and molecular biology
- Environmental influences
- Epidemiology
- Quality of life issues
- Transplantation
OTHER LAY SUMMARIES:
Meet the Podocyte
A better understanding of how the podocyte works.
A Lay Person's Guide to Glomerular Function
The simplified view of an incredibly complex process.
Where are we now and where should we be going with the Nephrotic Syndrome?
Roger Wiggins, M.D., a member of the NephCure Scientific Advisory Board.
What Has the Immune System Got Against the Glomerular Podocyte?
P.W. Mathieson

