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walk

Step Forward To Save Kidneys is the Nephcure Foundation's new national walk to raise funds, awareness and save lives. It's a day to come together to provide hope and support for the thousands of children, adults their families and friends who are living with devasting effects of kidney desease. Click below to see our 2008 sites and take a Step Forward o Save Kidneys...and lives.
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Are You Eligible?

Learn more about ongoing Clinical Trial for FSGS patients.
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NephCure Encyclopedia
(updated 01/08/2008)

In Basic Terms - FSGS & Nephrotic Syndrome
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Free Patient Education Seminars
Learn more about FSGS and Nephrotic Syndrome in your hometown.
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FSGS & Nephrotic Syndrome Roundtable

What is it and where can I find one in my area?
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Learn About the
Diseases


Nephrotic Syndrome

FSGS



Helpful Videos
& Brochures


To see what's available from NephCure,
Click Here



More U.S.
Sponsored Trials


Try new medication, get tested...
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NephCure Fund Raising

The whys, hows and best ways to get started...
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NephCure Chapters:

NephCure respectfully asks for your help...
How to Join


 
  meetkidneykid  
kidneykid

 Kidney Kid could be coming to your town,
   but first it needs a name...


 Kidney Kid made its premier at Jet Food Stores across Georgia
 to raise funds to support NephCure's mission.

 Submit your kidney names by May 20 and vote for your favorite
 finalist May 25. To submit kidney names or for information on
 how to bring Kidney Kid to your town email Miriam
 at savingkidneys@gmail.com and wait for details on how to vote
 in our May 2008 NephCure Now! newsletter.

 Sign up to receive NephCure Now!

   
Battlefield
(updated 01/08/2008)
Genetics

 FSGS & Nephrotic Syndrome Research Newsticker -   Findings and Trends

 Dr. Jochen Reiser, a respected nephrologist and assistant professor
 of medicine at Harvard Medical School, and Dr. Clemens Moeller,
 Research Fellow at the Massachusetts General Hospital, provide a
 quarterly update to respond to the most frequently asked questions:

  "What's the latest in science?

 Learn More...

   
  SpclRprt
Genetics

 Keagan's Turrubiates' Story

 Keagan Turrubiates is a loving, sensitive, hardworking, artistic and
 shy little 6 year old boy. On Monday, November 12th, 2007 Keagan
 was diagnosed with Minimal Change Nephrotic Syndrome. Two
 events will be held in Waupaca, WI in honor of Keagan Turrubiates
 and the thousands of other patients that are suffering from FSGS
 and Nephrotic Syndrome.

 Learn More...

 
  Nephspace
nephspace

 Interact with Patient Families and
  Build Support Networks

 The NephCure Foundation launched an international online
 community called NEPHSPACE, a place for dialogue for people
 and caregivers dealing with Nephrotic Syndrome and FSGS.

 Registration is temporarily FREE!

 Learn More...

 
img2

 Michigan 4th Graders Write to Congress
   On Behalf of Ailing Classmate

 Classmates of Molly Modes, a fourth grade student at Saint
 Michael Catholic School in Livonia, MI wrote almost 100 letters
 to their congressman asking for increased federal funding for
 kidney disease research. 

 Read More...

 7th International Podocyte Meeting 

 The NephCure Foundation is a sponsor of the 7th International
 Podocyte Meeting in Toronto, Canada.

 Read More...

 NephCure Seminar Held in Portland, OR

 On Saturday, April 26 nephrologists and patient families met with a  representative of The NephCure Foundation at the Doernbecher Children’s  Hospital in Portland, OR to discuss new treatments and therapies for Nephrotic  Syndrome and FSGS.

 Read more..

 NJ Grandfather Skydives in Honor of Grandson with
  Nephrotic Syndrome

 Devoted grandfather Tom Mills of Ringwood will tandem skydive for the  second time this September in an effort to raise money and awareness in the
 fight against the kidney disease affliction affecting his teenage grandson.

 Read more...

Emma_sm
 Full Story...
 


Emma's
Story

“Emma has always
been a bright,
inquisitive, and
sweet child.”


 Click Here


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Updates on the latest program announcements.

 

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