Our Story

Greer's Story:
My daughter Greer was diagnosed with Nephrotic Syndrome in January 2009, and she has been on prednisone ever since, with the longest remission lasting two weeks.

When she relapsed at 40mg, it made her doctor very nervous.  The doctor scheduled her for a kidney biopsy over Thanksgiving, which showed some damage at the tail end of the sample, but not to the glomeruli.  It affected the interstitial tissue, and they have no answer as to what caused this or why.  The doctors have not been able to give us a definitive diagnosis because to be we cannot provide them with the proper samples to diagnose her with Minimal Change Disease, but we know she does not have FSGS either.

The doctors now want to put Greer on cytoxin, which we initially agreed to, until we found out that we have to wear gloves and a mask in order to break the tablet. This caused my husband and I  to wonder why we would have her ingest something that is so dangerous for us to handle. We felt like we would be giving her poison if we did that, but her doctor wants to do something to get her into remission to get her off of prednisone.

I started researching alternative ways to treat Nephrotic Syndrome but could not find anything cohesive.  I found some stories of people taking Chinese herbs that actually turned out to be nephrotoxic.  I was about to schedule her an appointment with a naturopath when I happened to catch the tail end of Brian Orton's story on Evening Magazine.  Luckily, we have a DVR, and the TV was on, so I was able to rewind and watch the whole thing.  I felt like the story was sent from above just for us.

I am grateful for all of Brian's research on this topic and am hoping that his formula will work for Greer as well.

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