Our Stories

Emma’s Story

In August of 2010, Emma's eyes and legs started to swell. She went to many doctors who agreed that she had signs of Nephrotic Syndrome (NS) and in October of 2010 at the age of 16 months, Emma had a biopsy to confirm that she had NS. 

She required a medi-port be placed in her chest to reduce the amount of times she would be poked for blood work and medications. In the same month, I decided a second opinion was needed before any other life changing drugs would be given to Emma. So we packed up and she was transferred to Texas Children’s Hospital located in Houston, Texas.

She has needed many infusions and has never been able to come off of Prednisolone. Her last hospitalization was many months ago and luckily she has not needed any infusions for a few months now.

Emma's disease has changed not only her life but our entire family’s life as well. We continue to help her fight this disease and do all we can to help raise money for research in hopes of finding a cure for her and everyone who deals with this disease.  We take her disease one day at a time with the hopes that one day we will be