Resources for Medical Professionals

The NephCure Foundation is the one stop shop for information and resources on Nephrotic Syndrome and FSGS. NephCure works in conjunction with other prominent organizations such as: 

National Institutes of Health (NIH)
The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
The American Society of Nephrology (ASN)
The American Society of Pediatric Nephrology (ASPN)
American Nephrology Nurses Association (ANNA)     

Upcoming Conferences and Meetings:

American Society of Nephrology Kidney Week, October 30-November 4, 2012

Academic Research Departments:

University of Michigan, Department of Nephrology 
University of Michigan – Renal Genes, “Coordinating mutational analysis in selected monogenic renal disorders” (Friedhelm Hildebrandt, MD)
University of California San Diego Department of Cellular & Molecular Medicine, (Marilyn G. Farquhar, PhD)
Einstein-Montefiore Institute for Clinical & Translational Research, (Frederick Kaskel, MD, PhD)
Leonard Miller School of Medicine, University of Miami, Nephrology and Hypertension Division

Matrix Biology at Karolinska Institutet, Stockholm Sweden, (Karl Tryggvason, MD, PhD)
Duke Center for Human Genetics, (Michelle Winn, MD)
Laboratory of Inherited Kidney Disease, (Martin Pollak, M.D., Harvard) 
Washington University, Division of Immunobiology, (Andrey Shaw, MD)
The Center for Glomerular Diseases, Columbia University, (Gerald Appel, MD)

ONLINE News and Blogs:

Renal & Urology News  
Renal Fellow Network  
Nephron Power - Blog
The Kidney Doctor  

Trials:

ClinicalTrials.gov, A service of NIH

Organizations:

Italy: Associatiazone Sindrome Nefrosica Italia
France: Association des malades d’un Syndrome Nephrotique idiopathique A.M.S.N. 
Netherlands: NeirpatiEnten Vereniging Nederland  
Nephrothic Syndrome Trust