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NephSpace – Nephrotic Syndrome & FSGS Support Group

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Finding a good neph:
dmb2152's picture
by dmb2152
New reply 11:44 de la mañana
3 replies
What do you think are the most important things in finding a good doctor? Has anyone created an interview process for potential nephrologists? It is such an important relationship as someone with kidney disease. Does anyone have ideas on how to find...
Grief and loss of health and security
dmb2152's picture
by dmb2152
New reply 11:34 de la mañana
6 replies
Adults with FSGS
As a former mental health provider, I can't help but notice the correlation between declining health and the grief/loss process. The steps for grief/loss are traditionally denial, anger, bargaining, depression, and acceptance with movement back and...
Blackstrap Molasses! Positive health benefits for NS Patients
Dennis's picture
by Dennis
New reply 8:55 de la mañana
1 replies
Apparently, blackstrap molasses has beneficial health benefits for nephrotic syndrome patients (First Check with your Doctor)- Blackstrap Molasses helps in boosting energy levels, contains antioxidants, trace elements and vitamins, and helps with...
Important points to be very familiar with for blood and urine tests!
Dennis's picture
by Dennis
New reply 6:25 de la mañana
2 replies
Whenever I went for testing, these things were never clearly explained or hardly mentioned. Knowing them, is to know your kidneys! ______________________________________________________________________________ Nephrotic syndrome includes the following...
can i have protein in my diet
rahul's picture
by rahul
New reply 3:46 de la mañana
2 replies
Adults with nephrotic syndrome
tell me guys can i have protein in my diet or how much
Quaint kasyno internetowe
teartibato1988's picture
by teartibato1988
Adults with FSGS
Unadulterated transfer charter is orderly assemblage that rents trucks be worthwhile for gruff periods be proper of time generally ranging from fastidious not many kasyno online noon wide clean up...
Migraines
dmb2152's picture
by dmb2152
New reply 10:54 de la tarde
6 replies
Adults with FSGS
Hi everyone, Does anyone else get migraines? I never had them until very recently, and I am about a year into treatment with Cyclosporine 275 mg and Linisinopril 20 mg. I don't remember either med indicating this as a potential issue. My husband...
galactose thearpy
jessie17's picture
by jessie17
New reply 9:53 de la mañana
2 replies
Adults with FSGS
Anyone heard of galactose therapy and are there any members undergoing or had this treatmnt iv read a lady in Australia has had success with it.
Raise awareness, run a Triathalon!
Uju's picture
by Uju
We have 10 spots left for the NY Triathlon and we are having a sale! These coveted, sold-out spots are now on sale for $300 – that’s LESS then they were available for directly. If you or someone you know enjoys running Triathlons, please have them...
Side effects of prednisone and/or cellcept
treeroads's picture
by treeroads
New reply 4:08 de la mañana
10 replies
Adults with nephrotic syndrome
Hi everyone, I had a question about side effects of prednisone and/or cellcept. My nephrologist put me on these plus other drugs but I just started the prednisone and cellcept almost four months ago, but I have realized something...that being I have some...