Nephrotic Syndrome, FSGS, Kidney Disease
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  Christopher

Christopher has always been known as a fun-loving and positive boy. He is six years old and just finished his Kindergarten year at West Liberty Elementary. He was voted “Best Listener” by his classmates and by the end of the school year, he was already working on first grade material.

Christopher is coping with FSGS and is currently responding positively to treatment. He is presently on prednisone every other day and is steroid dependent. Christopher is a patient at the Children’s Hospital of Pittsburgh. The Renal Clinic and the rest of the staff have been extremely supportive to Christopher’s family and are happy with his response to treatment.

Christopher loves to swim, play baseball and play video games with his brother. He is looking forward to his family vacation in Myrtle Beach this July.

Christopher’s father, Ed, has written to his congressman on behalf of his son. In his letter to Congressman Casey, he tells Christopher’s story and emphasizes the need for further funding to support research into FSGS and Nephrotic Syndrome. Ed plans to continue to spread the word about FSGS, Nephrotic Syndrome and The NephCure Foundation and continue to advocate the need for more funding.

 

 
 
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