Become a Nephlete

The Nephlete Experience – Together to the Finish Line

Couch potatoes and athletes alike are invited to participate in established events to fundraise for NephCure in honor of friends or family members who are battling Nephrotic Syndrome and FSGS.  We call these fundraisers Nephletes, who are automatically part of the NephCure Super Squad, joining folks from all over the world who share your efforts in both large and smaller events. 

CLICK HERE TO BECOME A NEPHLETE!

NephCure currently has exclusive official charity spots in:

Or, choose your own race!  Potential events include marathons, swimmathons, bikeathons, triathalons, and other competitive challenges.  NephCure will support you by:

Step 1: Helping you to select any athletic event (marathon, half-marathon, triathlon, etc) to participate in honor of a co-worker, neighbor or loved one and in support of NephCure. You can also be registered in one of our charity spots and paired with a family to fundraise.  To find an event in your community, click here.

Step 2: Helping you set your personal fundraising goal!

Step 3: Creating your personal webpage so that you can invite your friends and family to join your efforts.

For more information and to register, please contact us or call Nadia Stadnycki at 1-866 Nephcure x26. The following Nephletes have already signed up:

CURRENT NEPHLETES AND EVENTS:

15 Nephletes Compete in the NYC Triathlon!
Fifteen extreme athletes will compete in the triathlon in NYC with a group goal of raising over $25,000.  A few spots are left in the sold-out marathon - to register to run, click here!

Team NephCure Takes on the Falmouth Road Race!
Fifteen dedicated athletes will compete in the Falmouth Road Race with a group goal of raising over $75,000.  To join this long-standing team of incredible Nephletes, click here!

Jeanine Timon Swims Lake Erie
In 2012, Jeanine Timon will take on the awesome task of swimming the width of Lake Erie - a 26-mile stretch that will take approximately 18 hours.  Jeanine will start in Pennsylvania and end in Canada to raise funds and awareness for NephCure.

NEPHLETES ARCHIVE:

Team NephCure Philly runs the Philadelphia Marathon - Congratulations!
Seven Nephletes ran the 2011 Philadelphia full or half marathon on November 20, 2011, raising over $3,000 for the cause and raising awareness in the City of Brotherly Love.  Congratulations to our amazing athletes!

Rob Koonz completed the 2011 Ironman Arizona - Congratulations!
On November 20, 2011, Rob completed the prestigious and grueling Ironman Arizona in honor of his son, Grayson, who was diagnosed with FSGS in the fall of 2011.  Rob said of his efforts, Ironman is a true test of endurance.  And while my son will not be racing, his race against FSGS is far more important than mine."  Rob raised just under $17,000. 

Frances Velez in the NYC Marathon - Congratulations!
An adult patient, Frances Velez competed for the third time in the NYC Marathon on November 6, 2011, this year in honor of NephCure and thousands of others affected by FSGS and Nephrotic Syndrome.  Frances' hopes to raise awareness both in her home state of Virginia and in New York. 

2nd Annual Colin Mackay Mad Scot Trail Ride - Congratulations!
Starting and finishing in Jim Thorpe on October 9, nestled in the Pocono mountains, ride along the scenic Lehigh River on a fine gravel and hardpack trail as early autumn settles over the valley. In a ride organized by friends of Colin MacKay, riders can create their own distance and turn around at any point, or ride all the way to White Haven and back for a 52 mile route. Once on the main trail, riders will cross only one road!  It doesn't get much better than that. This ride is held in honor of Colin Mackay, who suffers from Focal Segmental Glomerulosclerosis (FSGS).

Team New England Ran the Falmouth Road Race
Ten MA-based Nephletes laced up for the third year as our NephCure team in the Falmouth Road Race on August 14, 2011, raising over $70,000!

Team NephCure competes in the Nautica NYC Triathlon - Congratulations!
A super squad of 14 triathletes will compete in honor of 14 families affected by FSGS and Nephrotic Syndrome in the Nautica NYC Triathlon.  Follow their progress by clicking here.

Team Trenk DiPasquale runs the Rutgers Half Marathon for Matthew - Congratulations!
Ross Switkes with a team of his friends and colleagues from Trenk DiPasquale ran the Rutgers University Half Marathon in New Brunswick, NJ on April 17, 2011. They  participated in honor of Matthew Levine and raised over $4,000 in funds for better treatment, a cause and a cure for Nephrotic Syndrome.   

Steve Shatkin runs the LA Marathon for Andrew - Congratulations!
Steve Shatkin ran the LA Marathon on Sunday, March 20 for his nephew, Andrew, and says of his efforts, "Long after the marathoners have gone home, tended to their wounds and touted their accomplishments, the battle with Nephrotic Syndrome continues," says Steve.  "It continues for the parents, sisters, brothers, grandparents, aunts, uncles and friends of anyone that has the disease.  There's no finish line, no fan fare and no medal to hang around your neck. But there is hope."  Steve ran for his nephew, Andrew Stubblefield, in hopes that, "he, or any other child, will no longer have to suffer with Nephrotic Syndrome!"

Jane Modes runs the Disney Princess Half Marathon - Congratulations!
Jane Modes ran the Disney 5K and Disney Princess Half Marathon on February 26 & 27 in honor of her sister, Molly Modes, and thousands of others battling FSGS and Nephrotic Syndrome.  Jane raised over $3400 for NephCure and finished in the top 20!

Tour de NephCure Trail Ride in honor of Colin Mackay - Congratulations!
Organizer and mountain biking enthusiast Kevin Horio created a 52-mile trail ride starting at Jim Thorpe, PA in honor of his friend, Colin Mackay, and patients battling FSGS and Nephrotic Syndrome.  The ride was held November 20, 2010 and raised over $1,000 for NephCure.

Aidan's run for Colin - Congratulations!
Aidan O'Kane, a native Irishman, ran the 2010 Philadelphia Marathon on November 21 in honor of Colin Mackay, a Scotsman and longtime NephCure supporter in the Philadelphia area, raising over $1,100.

Eric Day is First Nephlete in Mexico - Congratulations!
Eric Day ran the 2010 SportCity race in Mexico on November 14, becoming the first Nephlete in Mexico and helping to raise awareness about NephCure to the community in Mexico.  Eric raised over $2,000! 

Run for the Garners - Congratulations!
Ben Mayer ran his 36th marathon for the Garner family in Idaho.  A recent move to New York allowed Ben the opportunity to join forces to combat FSGS and Nephrotic Syndrome in the New York Marathon on November 7, 2010, raising over $2,000.  And, it received great press coverage.  Read more...

Run for Cole - Congratulations!
Amy Meyer ran the New York Marathon this November 7, 2010 in honor of Cole Semegram.  A close family friend, Amy suppported the Semegrams and NephCure in finding the cause and a cure, raising $3,525!

Three Nephletes run the Marine Corps Marathon - Congratulations!
Two Michigan doctors, Dr. Sebastian Martini, Chrysta Lienczewski, Billy Joyce, and a NephCure supporter from Oklahoma, came together to fundraise for NephCure in the 2010 Marine Corps Marathon on October 31, 2010.  Together, they raised over $2,000.

Run for Matthew - Congratulations!
Walter Beal ran his last marathon 15 years ago. This year he trained and completed the NYC Marathon on November 7, 2010 in honor of Matthew and all patients affected by Nephrotic Syndrome and FSGS, raising over $10,000!

Run for Emma #2 - Congratulations!
Erica Richards returned for a second year as a Nephlete, this time stepping up the pace to run the Baystate Marathon in honor of her daughter, Emma, on October 17, 2010.  Erica raised over $4,000.

International Run for Kristian - Congratulations!
Alicia O'Neill joined the NephCure Super Squad as an international Nephlete, participating the Royal Parks Half Marathon in London, England on October 10, 2010.  Alicia ran in honor of Kristian, raising over $5,000.   

Team New England Nephletes run the Falmouth Road Race - Congratulations!
NephCure was an official charity of the 2010 Falmouth road race.  Nine Nephletes ran in honor of children affected by FSGS and Nephrotic Syndrome, raising almost $50,000.  Click here to see their results.

Richard's Run for Matthew - Congratulations!
Richard competed in the San Diego Rock 'N Roll Marathon on June 6th in honor of his son, Matthew, who suffers from childhood nephrotic syndrome, to raise awareness and raise funds to find a cure. Rich raised over $1900 for NephCure!

Run with Jerome - Congratulations!
Jerome was recently diagnosed with Nephrotic Syndrome. Jerome and his friend, Micheal, competed in the Issaquah Sprint Triathlon on Saturday, June 5th.  Micheal completed the running portion, while Jerome biked and swam, raising over $500 for NephCure!

Run for Brianna - Congratulations!
Brianna is 13 years old and has been dealing with FSGS since she was 2 1/2 years old. This June, Brianna will receive a kidney transplant. In honor of Brianna's strength and courage, Tim participated in the 2010 Boston Marathon on April 19, 2010.

Run for Kristian - Congratulations!
Tara and her friends ran the Ballycotton 10k in Ireland on March 21st, 2010 in honor of Kristian who was diagnosed with Nephrotic Syndrome when he was 20 months old.

Run for Emma - Congratulations!
Erica Richards ran the Seacoast Half Marathon in honor of her daughter Emma on November 8, 2009.

City to Sands, 100m Bike Ride - Congratulations!
Seven individuals, including Jason Katz, Dean Friedman, Steve Cronin, Ross Levine, Jason Margolis, Bryan Black and Mike Collins participated in a 100-mile bike ride on Saturday, September 12, 2009 and raised over $62,000!

Run for Andrew - Congratulations!
Andrew's mom, Elise, participated in the Falmouth Road Race in Cape Cod on August 9th, 2009.

Lydia Sankey - Congratulations!
Lydia ran the Boston Marathon on April 20th, 2009 in honor of her friends' son, Zach, who was diagnosed with Nephrotic Syndrome at age two and a half.

Kim Spicer – Congratulations!
Kim also reached the finish line of the Boston Marathon on April 20th, 2009 in honor of her friend’s son, Will, who has been battling Nephrotic Syndrome since he was 18 months old.

Meg Beierschmitt - Congratulations!
Meg ran in the Central Park Women’s ½ Marathon April 26th, 2009 in honor of Hannah, her boyfriend’s five year old cousin.

Unable to participate but still want to support the cause? Why not support someone who is already running? Click on any of the above listed participants and support them in their race to find a cure.