I was a second year student at the time I started having
problems with my kidney. I didn’t drink or smoke and I lived a very active lifestyle.
It came as a shock when I was diagnosed with Nephrotic Syndrome.
In 2009, during my second semester (around August), I was
sitting with a friend watching a movie at our boarding house when my friend
noticed that my feet were swollen.
Ty was born on Halloween in 2003. He was a very happy and
healthy little boy with no medical problems until June 2007. We first noticed
that Ty was putting on weight rather quickly and dismissed it as a growth spurt.
Then he started complaining that his legs were hurting him. We contributed this
to his swimming lessons.
When my
sister Alexis was 18 months old, we noticed that she had swollen eyes. We took
her to the doctor and they thought it was some type of allergy. Later, we
noticed it was getting worse. Her hands, feet and ankles became swollen so we
rushed her to the hospital. Tests indicated that Alexis has Nephrotic Syndrome
(NS).
When my daughter was 6 months old I knew something was wrong
with her. I was dismissed by my family doctor and the emergency doctors for
nearly 5 months before I finally found a doctor who discovered her kidney
disease.
Our son, Jackson was diagnosed with FSGS last week –
January 2013 - following a kidney biopsy.
He received this terrible news two weeks before his sixth birthday. We discovered this when we asked the
pediatrician if he should be getting sick as often as he was
My name is Hannah. When I was fifteen, I was diagnosed with a very severe case of FSGS. We caught it by accident through a routine blood test that revealed my cholesterol to be 400, even though I appeared to be a healthy teenager! Because there was also protein in my urine, I was referred to a nephrologist, and so my story begins!
My story begins in 2012 at spring break in my junior year
of high school. I was ready to head out to the beach when my aunt noticed
swelling in my feet and ankles.
Our son, Jackson was diagnosed with FSGS last week –
January 2013 - following a kidney biopsy.
He received this terrible news two weeks before his sixth birthday. We discovered this when we asked the
pediatrician if he should be getting sick as often as he was
I am Melissa, a third-year college student majoring in Elementary Education. I’m 18 years old and from the Philippines.
