NephCure News articles about Nephrotic Syndrome and FSGS Focal Segmental Glomerulosclerosis

Home | NephCure Now | News Articles | Personal Stories | Contact Us

NephCure News

NephCure Seminar Held in Portland, OR

On Saturday, April 26 nephrologists and patient families met with a representative of The NephCure Foundation at the Doernbecher Children’s Hospital in Portland, OR to discuss new treatments and therapies for Nephrotic Syndrome and FSGS.

The Ryan Family Meets with Congressman Burgess On January 31st, Dee and Kevin Ryan alongside the Washington Representative for The NephCure Foundation, Dale Dirks, met with Congressman Michael Burgess, 26th district of Texas. At this meeting they discussed the harsh reality of families affected by Nephrotic Syndrome and FSGS and the need for increased funding and research sponsored by the government.

Countdownto a Cure 2007

On Tuesday, November 13, Countdown to a Cure 2007 kicked off at Terrace on the Park, in Flushing Meadow Park, NY. Close to 800 guests attended to honor seven heroes for their contributions to kidney research and The NephCure Foundation as well as their personal efforts to raise awareness and research funds

NY Dad Meets With Senator Rodham Clinton (D-NY)
They met on behalf of his son and 50,000 patients affected by Focal
Segmental Glomerulosclerosis (FSGS) to discuss the importance
of increased funding into kidney disease research.

NephCure in Action - On the Science Front
Supported by a Scientific Advisory Board (SAB) comprised of some of the most knowledgeable experts in Nephrotic Syndrome and FSGS, the NephCure Foundation and its founders have provided ongoing support to numerous individuals and groups working to find the cause and cure of those conditions.

FSGS Trials:
If you are in a family dealing with focal segmental glomeruloslcerosis
(FSGS), the federal government wants your attention!

Clancy Family Fundraiser
The Clancy family has decided to raise money to help doctors find a cure for Nephrotic Syndrome. When they first initiated a fundraising program to raise money for NephCure, the original goal was to raise $2,000. The brothers have raised over $17,000 in the past two years!

Countdown to a Cure 2007 Ann Arbor
On October 9, 2007 Countdown to a Cure Ann Arbor kicked off at the Michigan Theater in Ann Arbor Michigan. Guests gathered to honor seven stars of medicine and the founder and president of The NephCure Foundation, Irv Smokler, Ph.D.

Local Boy Honored by Fundraiser Aimed at Finding a Cure for Two Debilitating Kidney Diseases
Sam Rogers, a five year old native of Romeoville, IL, has inspired Rick Trummer from Madison, WI, to host a fundraiser aimed at raising funds and awareness for two debilitating kidney diseases.

Change for a Cause: Ring Factory Elementary, Harford County, MD

In honor of a former employee and her daughter, a former student of Ring Factory Elementary who has been diagnosed with FSGS, the student council has decided to hold a fundraiser with profits going to The NephCure Foundation.

NephCure Foundation Names Dr. Gerald Appel To Scientific Advisory Board Position

Dr. Gerald B. Appel, one of the world’s most prominent kidney disease physicians and NBA star Alonzo Mourning’s personal doctor, has been named to the Scientific Advisory Board (SAB) of the NephCure Foundation.

Team Jesse Keeps the Momentum Going

Team Jesse continues to spread the word about the importance of FSGS and Nephrotic Syndrome research.

One Family from Ohio Leads the Effort
The Grizzard family's visit in Washington, DC discussing kidney disease research on Capitol Hill..

An Update from NephCure President Irving Smokler
"Distinguished guests, ladies and gentlemen, I would like to give what you might call a battle report from the field about our war on Nephrotic Syndrome and FSGS..." Complete Story ...

Why One Researcher Spends Less Time on Mozart, More Time Seeking Cure
Says Family Support,
NephCure Work Need to Beat Disease...Complete Story...

NBA Playoffs - Miami HeatWith Mourning, It's a New Day
By Michael Wilbon (Washington Post)
Complete Story...

More Scientists Agree to Guide NephCure
New Members Have Earned Headlines as Researchers Complete Story...

How Many FSGS Patients are in the U.S.?
Count Seems As Elusive as the Cure...Dr. Norman Siegel, the Yale University nephrologist who chairs the steering committee for the new five-year, nationwide Clinical Trial for FSGS patients, knows a good deal about FSGS. But in a recent meeting of his peers, he was thrown a question that even he could not answer.Complete Story...

What Scientists are Saying About Your FSGSMore than 100 researchers and doctors sat watching slides in a darkened hotel ballroom outside of Washington DC recently, part of an “A Team” of experts whose names most FSGS patient families would not recognize. They may not know your name either, but rest assured they were talking about you.Complete Story...

Genetics & Other Research May Unravel FSGS MysteriesIs it possible that a researcher in a laboratory in Massachusetts or Michigan of Maryland can help you or your loved one in the battle against focal segmental glomerulosclerosis (FSGS)? If you can be persuaded to give up a little blood and urine for genetic testing, the answer may be yes. That’s because researchers are finding that some variations of FSGS are caused by gene mutations, and knowing if you such a mutation can be useful to you and your doctorComplete Story...

More in the NephCure News Archive. Click Here

Hardships
Molly Modes was diagnosed with FSGS just before her eighth birthday.

Read More...

NJ Brothers take Charge!How seven-year-old Dylan and his brothers raised $7,730!
Read More...

April Ayala -
"Battle Well-Fought"
Click Here...

Melanie Stewart - "Girl raises awareness of her kidney disease"
Click Here...

Subscribe to NephCure's Monthly Email Update:Click Here

THE NEPHCURE FOUNDATION • 15 Waterloo Avenue, Suite 200 • Berwyn, PA 19312 • 610-540-0186 • info@nephcure.org

Privacy | Disclaimer