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Show your support for NephCure and invite your friends to join our cause. The Saving Kidneys. Saving Lives. wristbands come in NephCure’s signature orange color with our motto inscribed in white.
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Ed Fischer has joined the NephCure team as the Vice President for Development. Ed brings to NephCure more than 25 years’ experience in development with national and international non-profits working in international development, national healthcare, higher education, and community development.
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Pegah Safaeian will join the NephCure team on Monday September 22 as the Scientific Program Administrator. Pegah graduated from the University of Washington with a B.S. in Cellular and Molecular Biology and a B.A. in Psychology.She has since received her Master of Science degree in Forensic Science with concentration in molecular biology in from Drexel University in 2007.
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The mother of a Nephrotic Syndrome patient will be running in the South Carolina Kiawah Half-Marathon, along with other NephCure supporters, in an effort to raise awareness and funds for research into Nephrotic Syndrome and FSGS.
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Tiffany Giardina, teen singing sensation, will give a free concert at The NephCure Foundation’s “Step Forward to Save Kidneys” walk on Saturday October 4 at Etra Lake Park in East Windsor, NJ.
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The NephCure Foundation announced that eight grant recipients for the 2008 NephCure Research Scientific Grant Program have been awarded a total of more than $1.6 million. The Scientific Grant Program supports basic science research initiatives to understand the cause, identify treatments and find the cure for primary Focal Segmental Glomerulosclerosis (FSGS) and Nephrotic Syndrome.
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For his birthday party this past year Thomas decided to have a “toyless party” to benefit a charity of his choosing. After seeing a flyer at school featuring FSGS patient, Emma Raftery, Thomas decided that he wanted his birthday party to benefit Emma’s Hope, a fund dedicated to raising money and awareness for FSGS.
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The students of Concord Elementary in Milwaukie, OR have started their second annual Penny Drive in honor of fellow student, Blake. All proceeds from the Penny Drive will go directly towards raising awareness and funds for FSGS and Nephrotic Syndrome.
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Every year the Adams Key Club organizes a major fundraiser meant to benefit the community in which we live. This year, the selected fundraiser is a cell phone and ink cartridge collection to raise funds on behalf of NephCure.
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Jet Food Stores and The Nephcure Foundation have teamed up to raise $22,000 for the fight against kidney disease, exceeding the pre-campaign goal in just two weeks.
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On Saturday, April 26 nephrologists and patient families met with a representative of The NephCure Foundation at the Doernbecher Children’s Hospital in Portland, OR to discuss new treatments and therapies for Nephrotic Syndrome and FSGS.
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Kidney disease sufferer, Dylan Clancy, and his two brothers -- all under the age of 14-- have raised more then $27,000 for research by selling raffle tickets to Broadway shows, among other tactics. The Clancy family resides in Freehold, NJ.
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Classmates of Molly Modes, a fourth grade student at Saint
Michael Catholic School in Livonia, MI wrote almost 100 letters
to their congressman asking for increased federal funding for
kidney disease research.
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Six year-old Jenna Ryan, coping with acute
kidney failure, asked the Congressional Labor, Health and Human
Services Subcommittee (LHHS) for increased federal funding to
combat her condition in testimony today on Capitol Hill.
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On Tuesday, November 13, Countdown
to a Cure 2007 kicked off at Terrace on
the Park, in Flushing Meadow Park, NY.
Close to 800 guests attended to honor
seven heroes for their contributions to
kidney research and The NephCure Foundation
as well as their personal efforts to raise
awareness and research funds
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They met on behalf of his son and 50,000
patients affected by Focal
Segmental Glomerulosclerosis (FSGS) to
discuss the importance
of increased funding into kidney disease
research.
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Supported by a Scientific Advisory Board (SAB) comprised of some of the most knowledgeable experts in Nephrotic Syndrome and FSGS, the NephCure Foundation and its founders have provided ongoing support to numerous individuals and groups working to find the cause and cure of those conditions.
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The Clancy
family has decided to raise money
to help doctors find a cure for Nephrotic
Syndrome. When they first initiated
a fundraising program to raise money
for NephCure, the original goal was
to raise $2,000. The brothers have
raised over $17,000 in the past two
years!
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Sam Rogers,
a five year old native of Romeoville,
IL, has inspired Rick Trummer from
Madison, WI, to host a fundraiser
aimed at raising funds and awareness
for two debilitating kidney diseases.
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In honor of a former
employee and her daughter, a former student
of Ring Factory Elementary who has been
diagnosed with FSGS, the student council
has decided to hold a fundraiser with profits
going to The NephCure Foundation.
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Dr. Gerald B. Appel,
one of the world’s most prominent
kidney disease physicians and NBA star
Alonzo Mourning’s personal doctor,
has been named to the Scientific Advisory
Board (SAB) of the NephCure Foundation.
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Team Jesse continues
to spread the word about the importance
of FSGS and Nephrotic Syndrome research.
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The Grizzard family's visit in Washington, DC discussing kidney disease research on Capitol Hill..
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"Distinguished guests, ladies and gentlemen, I would like to give what you might call a battle report from the field about our war on Nephrotic Syndrome and FSGS..."
Complete Story ...
Says Family Support,
NephCure Work Need to Beat Disease...Complete Story...
More than 100 researchers and doctors sat watching slides in a darkened hotel ballroom outside of Washington DC recently, part of an “A Team” of experts whose names most FSGS patient families would not recognize. They may not know your name either, but rest assured they were talking about you.Complete Story...
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