news events
  Home | Chapters | Volunteer | Advocacy | NephSpace | Contact

Nephspace
 


The online community for families and caregivers dealing with Nephrotic Syndrome and Focal Segmental Glomerulosclerosis (FSGS).

NEW! NephSpace offers many great features connecting patients, their families, friends and caregivers.

The NephCure Foundation and its online community partner have designed this forum to provide a safe, secure environment to interact and build support networks.

Registration is temporarily FREE! NephCure requires registration (minimum age requirement is 13 years), including a valid email address that will never be shared without expressed permission. Registration will help to maintain a safe and secure network for all its members. Register here.

NephSpace members can enjoy the following:

Build a profile and make friends! Outline your primary areas of concern and interact with other people sharing similar concerns.

Write a blog! Create your personal online diary, where you can write about your experiences and observations. This is a great way to share your life with family, friends, and others in the Community.

Start a discussion! Start, read and join a discussion to share your stories and experiences.

Participate in surveys! Please participate in surveys to ensure that The NephCure Foundation continues to provide relevant stories and content. Surveys are anonymous.

The NephCure Foundation takes the privacy and safety of NephSpace members seriously. Members decide on a personal level how much information they wish to share. To comply with HIPAA regulations, online transmissions are protected via SSL (Secure Sockets Layer) to provide security and privacy over the internet.

Members are required to read the "Community Rules", "Privacy Policy", and "Terms of Use" before completing their registration.

In order to provide the service for free, ads will be placed on the interface.


If you have any questions or comments, please contact Miriam Long at mlong@nephcure.org or call 1 (866) NEPHCURE ext. 10.

     
   
Info Box


To register, click on the image below:

Nephspace_img

Rules
To enjoy rich, safe online communication, members are asked to follow these rules:

- No hate speech. No negative remarks about members.

- Be nice.

- Be yourself.

- Be safe. Be smart.

- Be aware.

- Be brief.

- No email harvesting. No spam.

- No marketing.

- Avoid using "net speak" and try to use proper spelling and grammar.

To learn more, click here.

 

 
       
   
 


 


 

 
 
  THE NEPHCURE FOUNDATION • 15 Waterloo Avenue, Suite 200 • Berwyn, PA 19312 • 610-540-0186 • info@nephcure.org Privacy | Disclaimer