Meet Nadia or...
...watch her on YouTube. See the daily video postings by NephCure's Nadia Stadnycki as she visits patients and families in Florida in April, 2012. Click here to see a map and access the videos >
Cuppycake Sam has NS
Learn about the boy with Nephrotic Syndrome (NS) who became famous. See the video, like it and share it. Go Here >
Our Stories
Logan's Story
My son Logan was diagnosed
in 2010 at age six with Minimal Change Disease/Nephrotic Syndrome.
He was really swollen all over his body. He gained about 20 pounds of fluid almost over night. I was really scared so I took him to the ER. The doctor there hadn't a clue what was wrong. They gave him pain meds and sent him home. They instructed me to take him to his pediatrician in the morning. His pediatrician diagnosed him, but did little to help him. They sent me to a nephrologist, which was nearly impossible to get into for months.
I was desperate, so I took him to the Children’s Hospital ER this time (where the specialist was located) and had him admitted. They treated him with prednisone and ranitidine daily at 60 mgs.
Seven months later Logan doubled over at the local pool. He had to be rushed to the Children’s Hospital by ambulance where he was admitted to the ICU. He stayed there two weeks and was treated for renal failure and sepsis in his third space. He almost died.
They wanted to do dialysis but I held out and asked for a 2nd opinion. With giving him aggressive doses of methopredisone, and antibiotics, he got better. They released him on 60 mgs prednisone again.
Two days later Logan woke up in severe pain and unable to make his hands and arms move. I again rushed him to the ER where they diagnosed him with calcium paralysis (due to the renal failure and meds) and again, rushed him via ambulance to yet a different hospital where he was admitted for another two weeks in their ICU.
After a month total in the ICU and finally finding a nephrologist who has over 20 years experience treating this disease, he is home and seems to be in remission, although he is on an every other day dose of 30 mgs prednisone.
Told by Logan’s mom, Hayley.
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