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Important Links

Jochen Reiser, M.D., Ph.D.
http://receptor.mgh.harvard.edu/Investigators/reiser/reiser.html

The Center for Glomerular Diseases: Focal Segmental Glomerulosclerosis
http://www.glomerularcenter.org/PATIENT%20INFORMATION/fsgs.htm

Camp Sunshine: A Retreat for Children with Life-Threatening Illnesses and their Families
http://www.campsunshine.org/

Your Kidneys and How They Work (NIDDK)http://kidney.niddk.nih.gov/kudiseases/pubs/yourkidneys/index.htm
American Association of Kidney Patientshttp://www.aakp.org

NephKids
http://cnserver0.nkf.med.ualberta.ca/NEPHKIDS/

A resource for parents who are living with childhood kidney diseases
http://www.kidcomm.org/

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
http://www.niddk.nih.gov/index.htm

Slides showing Minimal Change Nephrotic Syndrome
http://pathcuric1.swmed.edu/PathDemo/kid1/kid170.htm

Labratory of Inherited Kidney Disease Brigham and Women's Hospital (Labs of Martin Pollak, M.D., Harvard)
http://www.fsgs.bwh.harvard.edu

Labratory of Michigan Division of Nephrology (Labs of Lawrence B. Holzman, M.D., and Roger Wiggins, M.D.)
http://www.med.umich.edu/intmed/nephrology/Index.html

The function of CD2AP in the kidney (Lab of Andrey Shaw, M.D.)
http://pathology.wustl.edu/faculty/individual/shaw.html

Parent's Place Message Board
http://members3.boardhost.com/NSParents1/

KidTalk Email Support Group for kids with kidney disease http://kidcomm.org/kidtalk.html

YakTalk Email support group for Adults with Kidney Disease http://www.kidcomm.org/yaktalk.html

KidTalk Email Support Group for Siblings
http://kidcomm.org/kidtalk2.html

Health is Number One
http://www.healthisnumberone.com/

Health & Medicine Website Directory
http://www.internet-health-directory.com/Conditions_and_Diseases_Genitourinary_Disorders_Kidney_Nephrotic_Syndrome.html

Online Resource Bringing the Worldwide Kidney Disease Community Together
http://www.ikidney.com/iKidney/home.htm

Information on Lupus
http://www.doroughlupusfoundation.org/faq.html

International Organizations

Italy: Associazione Sindrome Nefrosica Italia

http://www.asnit.org/index.asp

France: Association des Malades d'un Syndrme Nephrotique idiopathique A.M.S.N.
http://www.orpha.net/associations/AMSN/

Netherlands: Nierpatiënten Vereniging Nederland
http://www.nvn.nl/

 

 

 
 
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