Introducing the "Carolinas" Chapter
Serving Northern Georgia, North Carolina, South Carolina and Virginia

Contact Information

Lynne Miller
Hilton Head, SC
rmiller396@aol.com

About This Chapter

My husband and I are pleased that we are able to do something to help find the cause and cure for FSGS and Nephrotic Syndrome. Our healthy and athletic son was diagnosed at age 25. Without a history of any such health problems in our family, we were very surprised. That was 8 years ago and we have watched him and his wife work through many health issues including her donation of a healthy kidney to him last Thanksgiving. Unfortunately, the disease has returned. Despite this setback, their positive attitude and willingness to fight this disease is an inspiration to all of us who care about them.

Our family is very thankful that there is now a foundation that will focus primarily on Nephrotic Syndrome and FSGS and we are excited to start a chapter here in the Carolinas . As we start this chapter, we have several goals in mind. First, as we learn more, we hope to help guide others affected and help them understand as much as we know about what is happening to them. Second, we would like to contact more nephrologists in our area and let them know who Nephcure is and ask them to provide information about this disease to their patients. The third goal of our chapter would be to develop more fund raising activities. Through this we would also bring more awareness to this disease that many have never heard of. We are grateful to those who have written us and ask that you keep in contact via email, rmiller396@aol.com.

I would like to mention that my three daughters also will be raising money for this cause on October 2. They are busy planning a 5K run/walk on the Virginia Creeper Trail in Bristol, Va., hence, “Creeping for a Cure.” Knowing that all money raised will be matched by a grant from the government, they are working very hard to drum up community support. In addition to planning the walk, they are writing a guide to the steps they have taken to plan the event. Please contact us at the email address above if you are interested in joining us on the walk, donating to receive a “Creeping for a Cure” t-shirt, or are interested in help planning this type of event in your area. You can also find more information about the run/walk on the Nephcure.org website with our link under the fundraising menu as the event draws closer.

- Lynne Miller, Hilton Head, SC