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THE NEPHCURE FOUNDATION
ADVOCACY UPDATE

On Wednesday, January 30th, 2008, the National Diabetes and Digestive and Kidney Diseases Advisory Council convened for its 176th meeting. This meeting was the first of the Council’s tri-annual meetings for 2008.

The Director of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), Dr. Griffin Rodgers, Chaired the meeting and also delivered the Directors Report. Dr. Rodgers’ Report largely focused on the recently completed appropriations process for fiscal year (FY) 2008. He expressed concern that while the National Institutes of Health received only a modest increase, NIDDK faired even worse and was essentially level funded.

At the meeting NIDDK’s annual research report entitled, Recent Advancements and Emerging Opportunities was also released, even though this document is usually not disseminated until February. Of particular interest to NCF, the 2008 report includes a section detailing the role of the phospholipase C epsilon gene (PLCE1) in Nephrotic syndrome. 

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NY Dad meets with Senator Rodham Clinton (D-NY) Read More

Dr. Holzman testifies before Senate Appropriations SubcommitteeOn May 19, Dr. Larry Holzman, chairman of the NephCure Foundation's Scientific Advisory Board, testified before the Senate Labor-HHS Appropriations Subcommittee and met with Congressman and Senators’ health staff.

Dr. Holzman spoke on the importance of increased funding for research and proposed a budget increase of 5% in Fiscal Year 2007 for the National Institute of Diabetes, Digestive, and Kidney Diseases (NIDDK), and the NIH overall.

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Dr. Holzman with
Senator Arlen Specter (R-PA)

   
       
               
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