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The
NephCure Foundation is the only organization
solely committed to seeking a cause and cure
for two potentially devastating kidney conditions,
Nephrotic Syndrome and Focal Segmental Glomerulosclerosis
(FSGS). NephCure is made up of patients, their
families and friends, researchers, physicians
and other healthcare professionals joining
forces to create awareness and generate funding
for research.
We aim
to help science unlock the biological mechanisms
that cause these serious conditions and ultimately
find a way to cure and prevent them. Until
that day, we will:
- Provide information,
education, support and advocacy for patients
and their families
- Raise public awareness
of Nephrotic Syndrome and FSGS
- Work to attract
researchers to this field
- Conduct public
and private fund-raising that will produce
substantial research grants
- Work with the National
Institutes of Health and other agencies
to increase funding for research
The
NephCure Foundation was established as a non-profit
organization in 1999 and is recognized as such
by the Internal Revenue Service. Since then,
we have testified before Congress four times,
adding impetus to the federal government’s
plans for the most comprehensive clinical trial
program to date into FSGS—a $12 million,
five-year project studying the effect of various
treatments on 500 FSGS patients.
Our
groundbreaking partnership with the National
Institute of Diabetes and Digestive and Kidney
Diseases (NIDDK) means the federal government
will match, dollar-for-dollar, the money raised
by NephCure. We have guaranteed $300,000 to
this program over three years, making available
a combined total of $600,000 to researchers
who will study samples gathered from hundreds
of FSGS patients in the upcoming clinical trial.
In other
activities, NephCure is conducting several
Patient Education Seminars each year and has
begun establishing local NephCure chapters
across North America. Programs such as these
provide patients and families with opportunities
to learn of the most recent treatment and research
news and take an active role in raising funds
and awareness.
The NephCure Foundation is a U.S. tax exempt 501 (c)(3) public charity. Click here to download the IRS certificate.
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